Jane’s Story*

I went through five years of infertility and two rounds of IVF to get pregnant. After a decently smooth pregnancy, I endured a three-day induction and a traumatic C-section during which I lost a significant amount of blood. My baby was sent to the NICU for low blood sugar at 12 hours old and given formula, but I was only given a pump 24 hours after birth.

I pumped every two hours in the hospital and met with all five of the hospital's lactation consultants, but never collected more than drops. My baby also wouldn't latch, and we later found out that he had tongue and lip ties. By Day 3 I was still collecting drops, and by Day 5, when we were discharged, the lactation consultants told me that "formula was just fine" and to use an SNS to feed my son if I wanted to breastfeed. I met with an independent lactation consultant the day after I came home, and she suggested that I keep my pumping schedule and take a host of supplements. I tried to keep this up, and even dragged myself out to multiple stores eight days after my C-section to locate the supplements. But after three weeks of round-the-clock pumping, downing supplements, chugging water and adding in breast exercises and power pumps, I wasn’t making more than a total of two ounces of breast milk for the entire day. At most pumping sessions, I was barely making 10 mL combined.

I had entered the hospital planning to exclusively breastfeed, but by my baby’s 10-day check-up, my baby was getting 90 percent formula and 10 percent breas tmilk in a bottle. I was traumatized from the birth, exhausted, anxious and utterly broken. My midwife, who is known in my city for her knowledge of women's health, simply told me that she had experienced low supply too but powered through it and nursed her daughter for eight months. There was no other advice, and she said that she'd only check my hormonal bloodwork if I was no longer breastfeeding. Finally, a friend who used to work with La Leche League came over twice to help my son latch. She watched me struggle for 20 minutes to get him to latch for less than 5 minutes, then declared that I "just needed to nurse him more" to fix my supply issues.

After nearly six weeks of holding my pump bottles instead of the baby I worked so hard to have, I began to wean off the pump, and our breastfeeding journey ended. I got back in touch with the independent lactation consultant, who loaned me the books "Healing Breastfeeding Grief" and "Finding Sufficiency," which is how I learned about IGT and chronic low supply.

*Jane is a pseudonym to protect the author’s privacy.

“I was traumatized from the birth, exhausted, anxious and utterly broken. My midwife simply told me that she had experienced low supply too but powered through it and nursed her daughter for eight months. There was no other advice.”

— Jane

How old was your baby when you realized you had low milk supply?

Three to four days old. I was pumping and trying to latch my son in the NICU, but I was only collecting drops.

What were some of your goals when you first started your breastfeeding journey? How did these goals shift throughout the time you were lactating?

I assumed I'd be able to exclusively breastfeed. By the time I left the hospital, my son was getting 90 percent formula and 10 percent expressed milk. I thought I could up my supply by exclusively pumping. By three weeks of age, I realized that I wouldn't be able to achieve this, as I never pumped more than two ounces in a day.

What advice were you given, if any, to increase your supply? By whom?

I was told to pump by the hospital lactation consultants. My midwife had zero advice for me. The independent lactation consultant I saw recommended power pumps, goat's rue, and More Milk Special Blend.

Did you feel supported by your medical providers? Why or why not?

I felt supported at the hospital until Day 4, when the conversation abruptly turned to, "Well, formula's OK." I got no support from my midwife. I got good support from the independent lactation consultant while I was her client.

What is one thing that you wish someone would have told you when you began your low milk supply journey?

That low milk supply is something that can happen, and that there are clearly defined risk factors.

Is there any support from people other than medical providers (e.g. lactation consultants, family, friends, peers) that you wish you had gotten during your low supply journey?

I wish I had gotten more help with the baby from friends and family. I also wish I had had access to a hands-free pump at the time.

 

Did you feel prepared for the possibility of low milk supply? Why or why not?

No. Despite a degree in biology and years of experience in biomedical science, I had no idea that it existed.

What is one thing that you would like all medical and lactation professionals to know about chronic low milk supply?

That there are risk factors that should be discussed prenatally with patients.

In one sentence, why does low milk supply matter to you?

Because after all I went through to have my baby, I wanted to feel like his mother – and low supply robbed me of that feeling.

What is one thing about your low milk supply experience that makes you proud?

I'm working with an amazing group of people to solve the low supply puzzle and educate our healthcare providers about this issue.